Menieres disease

[ndlancer95 0]

My dad was diagnosed with this many yeArs ago and had a flare up when he was poisoned with carbon monoxide at work. My dad thinks that he is the only one with this who has to take pills evryday to control it. Also, what are your trggers for an attack? My father's are alcohol chocolate and any sodium at all over 200mg

[RadioGaGa 162]

Sounds like what my Dad has...I'm pretty sure he's refered to it as that. Seemed to happen all of a sudden, no gradual hearing loss...mind you, he's always worked around loud mcahinary...so maybe the onset was not as noticeabel to him.

He's noticed that after flying his hearing actually improves for a few hours after landing...I guess the pressure or something...but then it goes back to 'normal' which for him (he says) is like a ringing in his ear all the time...loud restauarants and stuff like that drive him nuts...cause it makes the ringing worse.

[jds 20]

My wife has it. Many days she has a constant ringing in her ears that drives her nuts (there is a theory that this is what Van Gogh had so severly that it drove him insane and is why he cut his ear off). If the ringing stays low she can get used to it but sometimes it gets bad. She finds that flourescent lights can trigger it sometimes especially the large banks of them found in places like Home Depot. She definitely notices it when there is a change in air pressure. SHe takes two meds for it and that has the dizziness that comes with it fairly under control. In severe cases, people are so dizzy they become incapacitated with motion sickness and collapse on the ground unable to stand. My wife had a couple of severe episodes like this (which led her to the doctor in the first place). SHe said it felt like she was playing that carnival game where you put your forehead on the butt of a baseball bat on that is standing on its end and then spin around several times in that position and then try to walk. SHe said it stayed like that for hours unlike normal dizziness that eventually wears off. Doesn't sound like fun

[ndlancer95 0]

my dad has symptoms of both cases i've heard here. he worked with jackhammers as a teen and has had many a episode, cuasing him to lose his job as I wrote in the venting spot. i hope to hear more of what people do to treat it and how your lives have changed or their lives I should say. Thanks a bunch boys. Im sorta down in the dumps with the loss of our income (no gear whoring) and my dad being so sick he can barely walk sometimes (jds' wife's situation). Though I've never met anyone of you guys, though I hope to at MSH IX, I thank both of you for letting me know im not the only one who experiences the troubles I do with health.

[jds 20]

A guy I work with has it too. I have also met a couple of other people with it. I found that once my wife was diagnosed and I had actually heard of it if I metnioned it in certain circumstances I was surprised by how many people I met who either had it or knew someone with it. I think a lot of people feel like they are the only ones but it is just something that doesn't get mentioned a lot.As I said, my wife has not had a bad episode since she started her meds (which consisted of a diuretic for fluid in the ears and an other pill neither of which were too expensive) she hasn't had a debilitating episode in years

[pody37 3]

My mum has it, and had symptoms similar to those of jds' wife. It seemed quite often to not really be triggered by much, but i do remember in certain supermarkets the florecent lights would have a big effect on her and often cause her to have an attack. They were pretty bad and caused her to have to give up work.

She consulted the doctors here and they gave her various pills which seemed to help a bit. But then she was offered to have a new procedure done, which the doctors were developing. She was one of the first few people to have this done i believe.

Basically they removed the inner ear from her problem side, so now she is deaf on her right side. The main new part of this new treatment is basically a small box that clips onto her head and transfers sound waves through her skull to her good ear, so she is still able to hear on both sides.

I think its fair to say that it has been a great success. She is now able to work (albeit part time to begin with) and *touch wood* hasnt had an attack for some time now. The box does provide its problems in busy places as it picks up all the noise and kinda creates a fuzz from too many noises.

If you want any more info on anything i mentioned just shoot me a pm.

[ndlancer95 0]

Due to the fact that my dad was in the HOSPITAL for two weeks straight, his job fired him for not being in work. I know that this is a crock of sh1t and he is mad about this. Would this be a basis for suing the company? Mind you he was poisoned in his work truck that had been cleared for CO and passed all nspections

Due to the fact that my dad was in the HOSPITAL for two weeks straight, his job fired him for not being in work. I know that this is a crock of sh1t and he is mad about this. Would this be a basis for suing the company? Mind you he was poisoned in his work truck that had been cleared for CO and passed all nspections

[pody37 3]

I had a chat with my mum earlier and she reminded me of the Menieres Society. Its a UK based charity set up to help people with menieres and people who care for them. Although i think its mostly UK based there are members from other countries including USA. Apparently it is really good and provides lots of information about the disease and how to cope with it.

I thought it might be of interest to some of you: Menieres Society

Edit: Double post